Some of the organisations and projects that we have worked on are listed below in reverse date order (some projects run for more than a year).
2022
- DeClutter – study of the effectiveness of decluttering services for people who hoard. Led by Jennifer Owen.
2021
- Walk leader for a study of the benefits of Nordic Walking for people with Parkinson’s Disease. See the flyer here and Participant Information Sheet here.
- Research study on forensic care for inpatients aged 55+ – led by Chris Griffiths.
2020
- Recollect 2 study into the effectiveness of Recovery Colleges (£2,499, 890) led by Dr Claire Henderson and Prof Mike Slade. As a co-applicant, I coordinate the Lived Experience Advisory Panel.
- Surrey Choices – support for their Changing Days project.
2019
- Collaboration with the National Autistic Society and Skills for Care on guidance for commissioners
- Work with two residential special schools on community inclusion
- Training on strengths-based community inclusion for Leeds
- Review of funding support for disabled ordinands in the Church of England
- Research into the experiences of people aged 55+ in forensic mental health services, led by Dr Chris Griffiths (total funding £150,000)
2018
- BRIGhTMIND research study into the use of Transcranial Magnetic Stimulation for moderate to severe depression, led by Prof Richard Morriss (total funding £1,890,000).
- Centre for Mental Health and Human Rights.
- Birmingham City Council – review of day services
- Edge Hill University – session on service user and carer involvement in health and social care education
- Continuation of work for the Institute of Mental Health, NDTi, Quality Performance Mark and Time to Connect.
2017
- The Network – focus on leadership and management
- Institute of Mental Health – supporting public involvement in individual research projects and developing their strategy from May 2017
- East Midlands Academic Health Science Network – create a resource on public involvement in commercial projects.
- Quality Performance Mark – redesign audit tools for accreditation of organisations delivering independent advocacy
- NDTi – support for Green Light facilitators and development of the Green Light Discussion Forum
- Waymarks – introduce the Inclusion Web for use in their service.
- Nottinghamshire Healthcare NHS Foundation Trust – social inclusion training for Peer Support Workers.
2016
- Recovery Colleges – The Recollect study is an NIHR Programme Development Grant (£100,882) led by Professor Mike Slade (2016-2017) – I was PPI lead.
- Health Education England – develop resources on service user and carer involvement in nurse education
- Time to Connect – a project funded by the Big Lottery to promote inclusive lives for people living in care homes.
- Wordsley House – deliver training on social inclusion
- Quality Performance Mark – inspect and accredit providers of independent advocacy.
- Community Navigator – consult to this research project funded by the NIHR School of Social Care Research led by Bryn Lloyd-Evans (2016-2018, total funding £250,000).
2015
- East Midlands NHS Leadership Academy – Review of public involvement
- Individual Placement and Support in forensic services – NIHR Research for Patient Benefit (£251,903) led by Dr Najat Khalifa (2015-2017) – I was PPI lead. Lessons from the study are reported here.
- Altrum – draft policy on relationships and professional boundaries
2013
- East Midlands Academic Health Science Network – I was Public Involvement lead up until 2015.
- Long stay patients in secure psychiatric services – NIHR Service Delivery and Organisation (£666,262) led by Professor Birgit Vollm (2013-2016) – I was PPI lead.
- MindTech – NIHR Healthcare Technology Cooperative (£1,140,000) led by Professor Chris Hollis (2013-2017) – I was PPI lead at the start.
2012
- Supporting the Research Engaging Patients and the Public (REPP) group in the East Midlands 2012-2015
- NHS Confederation – review the quality of care for people with learning disabilities or autistic spectrum conditions provided by mental health services and update the Green Light toolkit.
- IONNA – NIHR Programme Development Grant (£99,943) led by Professor Conor Duggan (2012-2013) – I was PPI lead.
2011
- CLAHRC Nottinghamshire, Derbyshire and Lincolnshire – I led on public involvement 2011-2013.
2010
- Connecting People – NIHR School of Social Care Research (£242,615) led by Professor Martin Webber (2010-2012) – I was on the Steering Group.
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